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Spaulding Harvard TBI Model System 2024 Summit

Improving Access to Post-Acute Care for People with Severe Traumatic Brain Injury: A Call to Action

This summit brought together a varied TBI community of care providers, persons with lived experience, federal and state healthcare funding agency representatives, commercial insurance companies, research funding agencies, legislative committees, consumer advocacy groups, academic institutions, and professional organizations to address these aims:

  • Summarize the state of the science on recovery after severe TBI;
  • Promote public awareness of the unmet healthcare needs of persons who have sustained severe TBI;
  • Promote efforts to rectify lack of access in national healthcare policies that impede access to inpatient rehabilitation facilities for this vulnerable population.

Please view the agenda below and click on links to view videos and presentations for each topic.

  • All videos are closed captioned. Click on CC when viewing on YouTube. 
  • The speakers listed below include the timestamp for the videos next to their name.
  • Click on titles to view the PowerPoint presentation.

Agenda & Archived Proceedings

Welcome 

Joseph T. Giacino, PhD (0 minute)
Project Director, Spaulding-Harvard TBI Model System
Director, Rehabilitation Neuropsychology, Spaulding Rehabilitation Hospital
Director, Spaulding Rehabilitation Network Disorders of Consciousness Program
Co-Director, Rehabilitation Outcomes Center at Spaulding
Professor, Department of Physical Medicine & Rehabilitation, Harvard Medical School

Donald Berwick, MD (7 minutes)
President Emeritus & Senior Fellow, Institute for Healthcare Improvement
Chair, National Academy of Science, Engineering & Medicine, Committee on Accelerating Progress in TBI Research and Care

Statement of the problem and state of the science
Disabilities associated with severe TBI and unmet needs

Flora Hammond, MD (1 minute)
Professor and Chair, Department of Physical Medicine & Rehabilitation
Indiana University School of Medicine
Current knowledge of recovery trajectories and outcome

Joseph T. Giacino, PhD (11:45 minutes)
Project Director, Spaulding-Harvard TBI Model System
Professor, Department of Physical Medicine & Rehabilitation, Harvard Medical School
Inpatient rehabilitation aims and effectiveness

John Whyte, MD, PhD (23:14 minutes)
Institute Scientist Emeritus, Moss Rehabilitation Research Institute
Overview of existing health service delivery pathways

John Corrigan, PhD (38:10 minutes)
Professor, Department of Physical Medicine & Rehabilitation, The Ohio State University Wexner Medical Center
Director, Ohio Brain Injury Program
CMS’s 3-hour rule: Strength of the evidence

Cynthia Beaulieu, PhD, ABPP-CN  (1:00:20 minutes)
Associate Professor – Clinical, Department of Physical Medicine & Rehabilitation
The Ohio State University College of Medicine
Discussion

Chloe Slocum, MD, MPH (1:19:06 minutes)
Director, Health Policy, Spaulding Rehabilitation, Department of Physical Medicine & Rehabilitation

NASEM TBI Roadmap Report on gaps and challenges in current TBI care and research (Moderator: J. Giacino)
Purpose, scope and relevance to Summit

 

Donald Berwick, MD (0 minute)
Chair, National Academy of Science, Engineering & Medicine, Committee on Accelerating Progress in TBI Research and Care
NASEM findings, recommendations and actions

Geoffrey Manley, MD, PhD (10:52 minutes)
Professor & Vice Chairman of Neurological Surgery
University of California at San Francisco
Chief of Neurosurgery, Zuckerberg San Francisco General Hospital, Co-Director, Brain & Spinal Injury Center

Real-world perspectives on facilitators and barriers to care
History of post-acute care in the U.S.

Anne Deutsch, RN, PhD, CRRN (0 minute)
Clinical Research Scientist, Shirley Ryan Ability Lab's Center for Rehabilitation
Research Associate Professor, Department of Physical Medicine & Rehabilitation, Feinberg School of Medicine
Bioethics of care after severe TBI

 

Joseph Fins, MD, MACP, FRCP (15.38 minutes)
The E. William Davis, Jr., MD, Professor of Medical Ethics & Professor of Medicine
Chief, Division of Medical Ethics, Weill Cornell Medical College
Perspective of a person with lived experience

 

Enrico Quilico, PhD, MA, BEd (32:53 minutes)
Postdoctoral Fellow, Baylor Scott & White Research Institute
Perspective of a family caregiver

Maryam Mohit (39:28 minutes)
Perspective of an advocacy organization serving persons with severe TBI

Rick Willis (46:43 minutes)
President & CEO, Brain Injury Association of America
Discussion

Joseph Fins, MD, MACP, FRCP (56:35)

Successful clinical-scientific-government partnerships
UK Rehabilitation Outcomes Collaborative (UKROCS)-(UK)

Lynne Turner-Stokes, DM, FRCP, MBE (0 minute)
Northwick Park Professor of Rehabilitation Medicine, King’s College London
Director, Regional Hyper-acute Rehabilitation Unit, Northwick Park Hospital, UK
EENnacoma, Knowledge Center for Patients with PDOC (NED)

 

J. Lavrijsen, MD, PhD (16:19 minutes)
Senior Researcher in Elderly Care Medicine
Lecturer & Program Leader, Department of Primary & Community Care
Radboud University Medical Center, Nijmegen, Netherlands 
Brain Injury CA-Canadian TBI Research Consortium (CA)

Alexis Turgeon, MD, MSc (31:19 minutes)
Professor & Director of Research, Department of Anesthesiology & Critical Care Medicine
Faculty of Medicine, Université Laval, Québec City, Québec, Canada
Research Chair in Critical Care Neurology & Trauma
International Initiative for TBI Research (InTBIR)

Kathryn Hendrick (47:42 minutes)
Kathryn Hendrick Communications
Curing Coma Campaign (US)

Claude Hemphill, MD, MAS (1:01:53 minutes)
Kenneth Rainin Endowed Chair in Neurocritical Care
Professor of Neurology & Neurological Surgery
University of California, San Francisco
Chief, Neurology Service, Zuckerberg San Francisco General Hospital
Co-Chair, Curing Coma Campaign
Payor perspective: Paradigm for Healthcare (US)

Michael Choo, MD, MBA, FACEP, FAAEM, CMRO (1:14:27 minutes)
Chief Medical Officer & Senior Vice President
Workers’ Compensation, Paradigm
Discussion

Joseph T. Giacino, PhD (1:27:47 minutes)

Next Steps: Joe Giacino (0 minute)
Leavitt Partners’ TBI Workshop on the “3-hour rule”

Laura Brown, JD (0:32 minutes)
Director, Leavitt Partners, LL

Closing

Final remarks

Joseph T. Giacino, PhD (5:09 minutes)

 

Supported in part through the Rehabilitation Outcomes Center at Spaulding (ROCS).

Sponsored by Spaulding-Harvard Traumatic Brain Injury Model System (NIDILRR Award #90DPTB0027-01-01).